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neurofibromatosis type 1 and 2

Submitted on Tuesday 9th April 2013

Published on Wednesday 10th April 2013

Current status: Closed

Closed: Thursday 10th April 2014

Signatures: 675

Tagged with

Children ~ UK

Petition Action

neurofibromatosis type 1 and 2

Additional Information

NF-1 is a tumor disorder that is caused by the mutation of a gene on chromosome 17 that is responsible for control of cell division. NF-1 causes tumors along the nervous system. NF-1 often comes with scoliosis (curvature of the spine), learning difficulties, eye problems, and epilepsy.We demand that the Government sets up a dedicated fund to aid research into a cure for this disease which effects 25000 people in the UK and the sufferer can have a 50% chance of passing it onto their children. By aiding research in to possible treatments/cures generations of sufferers could have a better quality of life and not be reliant on palliative care.


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