Have your say on government e-petitions

Prescribe Cystic Fibrosis patients with Orkambi drug to stop CF in its tracks.

Submitted on Tuesday 9th January 2018

Rejected on Monday 15th January 2018

Current status: Rejected

Rejection code: no-action (see below for details)

Petition Action

Prescribe Cystic Fibrosis patients with Orkambi drug to stop CF in its tracks.

Petition Details

Cystic Fibrosis currently gets no government funding, those not in full time education have to pay for prescriptions & everyday is a struggle. But there is light at the end of a long dark tunnel for mutation F508del in the form of Orkambi. This drug drastically improves quality & length of life.

Additional Information

I suffer from Cystic Fibrosis. I was given until I was 15 to live, I’m now 28! And have the most gorgeous baby boy. It saddens me that Orkambi is ready for me but that we are told “We know how important a new treatment option would be for people with Cystic Fibrosis; but for the benefits it offers, the cost of Orkambi is too high.” (Professor Carole Longson, director of NICE). The benefits are less hospital admissions, the ability to breathe with ease & being around our families for longer...


You can't sign this petition because it was rejected. But you can still comment on it here at Repetition.me!

This petition was rejected

The Government e-Petitions Team gave the following reason:

The UK Government and Parliament are not responsible for prescribing drugs.

You could start a new petition asking for the UK Government to provide funding specifically for Orkambi to be made available on the NHS for people with Cystic Fibrosis, if that's what you would like to happen.

Have your say on this petition!

comments powered by Disqus

repetition.me is a Good Stuff website

34.229.173.107 Fri, 29 Mar 2024 04:48:31 +0000