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SMA type 1 children to be given tracheostomy if and when needed!

My little girl has a non-curable disease called Spinal Muscular Atrophy, type 1! Doctors told me she wouldn't live passed her 1st birthday, but is now 19 months old.
Up until now, she has been fine. But recently she developed a chest infection and has became very ill.
Doctors are refusing to give her life saving treatment, as they feel she has no quality of life!! (Couldn't be more wrong!!)

This petition is to request every child with SMA type 1, to be given the necessary treatment to help them survive!

Thanks xx

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Signatories

6,198

Currently ranked 708 out of 103,925 petitions ever created.

Diversity index: 100%

Status

Closed

Created By

Kerry Martin

Created On

Monday 11 November 2013

Closing Date

Wednesday 12 February 2014

Tagged With