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Test all newborn babies for SMA gene or to see if they are carriers

Submitted on Monday 13th February 2012

Rejected on Wednesday 21st June 2017

Current status: Rejected

Rejection code: duplicate (see below for details)

Petition Action

Test all newborn babies for SMA gene or to see if they are carriers

Additional Information

We would like to see all newborn babies tested to see if they have Spinal Muscular Atrophy ( SMA ) or if they are carriers of the SMA faulty gene. Carriers come from all walks of life and affects 1 in 40 people if two carriers have a baby together there is a 1 in 4 chance of their baby having SMA, 80% of type 1 babies will die before their 1st birthday and all need 24hr care type 2 SMA children will be in a wheelchair all their lifes. It makes more sense to test at birth so that familys know before their child is born dying my grandson lived for 6 weeks and 4 days, 4 weeks of his life spent in ICU we did not know we were carriers and any future pregnancys will now have be tested. Surely it would cost less financially in the long run when you weigh up the cost of looking after a SMA child. Please sign and help put a stop to SMA thank you


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This petition was rejected

The Government e-Petitions Team gave the following reason:

There's already a petition about this issue. We cannot accept a new petition when we already have one about a very similar issue.

You are more likely to get action on this issue if you sign and share a single petition.

E-petition: SMASH SMA Free screening for Spinal Muscular Atrophy

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