Duchenne Muscular Dystrophy standards of care

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Duchenne Muscular Dystrophy standards of care

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Duchenne Muscular Dystrophy is the most common, fatal genetic condition in children but in Denmark, life expectancy is twice that in the United Kingdom. We, the undersigned, demand an urgent public inquiry into Duchenne care in the United Kingdom, so that poor practices can be fully investigated and a robust comparison of the British and Danish care models undertaken.

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