Submitted on Sunday 16th August 2015
Rejected on Monday 17th August 2015
Current status: Rejected
Rejection code: duplicate (see below for details)
Fund the enzyme replacement therapy Vimizim for sufferers of Morquio disease.
Morquio disease is an ultra-rare and life limiting enzyme deficiency with just 88 sufferers in the UK. NHS England have been failing those sufferers since the drug Vimizim was licenced in the UK in April 2014 and have now said they will not make an interim funding decision at all.
The National Institute for Health and Care Excellence (NICE) are due to make a funding decision on Vimizim for Morquio disease on 28th October 2015. We the undersigned believe that despite the comparatively high per patient cost of treatment for Morquio and other ultra-rare diseases, that NHS England should provide funding and that it would be unfair not to treat these few children based on the rarity of their condition.
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The Government e-Petitions Team gave the following reason:
There's already a petition about this issue. We cannot accept a new petition when we already have one about a very similar issue.
You are more likely to get action on this issue if you sign and share a single petition.
We cannot accept duplicate petitions. We think this petition is similar to yours:
petition.parliament.uk/petitions/104559
You might like to sign this petition instead. It is more likely to get more signatures that way.
3.17.76.163 Wed, 25 Dec 2024 22:44:17 +0000
