Make treatment for Tarlov Cyst Disease available on the NHS.

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Make treatment for Tarlov Cyst Disease available on the NHS.

Petition Details

Also known as perineurial cyst or sacral nerve root cyst, the Tarlov Cyst is a dilation of the nerve root sheath or outer covering of the nerve. Cerebral spinal fluid gets trapped inside the sheath and forms a cyst. The fluid in the cyst can put pressure on the nerve and cause debilitating symptoms.

Additional Information

The cyst is the nerve and therefore cannot be cut out. When the neurological symptoms become severe and the sacrum is eroding and remodeling, surgery may be the treatment of choice.
The surgery is not available under the NHS, either routinely or through specialised commissioning because of a lack of evidence for its effectiveness.
UK citizens have to pay up to 30.000 £ for a private surgery abroad(Cyprus or USA).
http://tarlovcyst.co.uk/
http://www.tarlovcystfoundation.org/home0.aspx

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