Submitted on Tuesday 23rd February 2016
Rejected on Friday 26th February 2016
Current status: Rejected
Rejection code: no-action (see below for details)
Give people with rear Poland syndrome a registered awareness.
Poland syndrome is a rare birth defect characterized by underdevelopment or absence of the chest muscle (pectoralis) on one side of the body, and usually also webbing of the fingers, small hands and arms can accrue to. Ps can also come with missing/ shortened organs shoulder and rib abnormalities.
My son was born with poland syndrome.
He has no major or minor pectoral muscle, high right shoulder small right hand and arm small right leg and lumber lordosis of the spine gastrointestinal and problems with his bowel my son now 15 months Finley-blu when we was first told there was no information about ps and the is very little none we had to travel to different places to get the help he needed but if there was awareness then we would of none more.
You can't sign this petition because it was rejected. But you can still comment on it here at Repetition.me!
The Government e-Petitions Team gave the following reason:
We can't accept your petition in its current form as it goes not call for a clear action from the UK Government and Parliament. You could start a new petition calling for the Government to raise awareness of Poland syndrome and provide more information to those affected.
18.216.114.23 Tue, 16 Apr 2024 14:16:03 +0100
