Submitted on Sunday 3rd April 2016
Published on Thursday 7th April 2016
Current status: Closed
Closed: Friday 7th October 2016
Signatures: 9
More research into Medullary Sponge Kidney disease (MSK)
I am in the MSK patients I live with daily pain upon researching this illness there is not much research we have chronic pain and many other daily problems there isn't many doctors that understand this illness and living with this is a nightmare you get labelled as drug users this is wrong
I found a group on Facebook this seems to be a worldwide problem not many doctors understand this disease and I think there should be more research into what could help us live a normal life it doesn't just affect those patients it affects everyone around us and I think there should be more research into what could help us live a normal life we shouldn't have to endor there ignorance towards this illness please can we have the help we need to live a half normal life
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