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Sufferers of rare cancers to have free access to new cutting edge treatments

Submitted on Monday 25th April 2016

Published on Friday 29th April 2016

Current status: Closed

Closed: Saturday 29th October 2016

Signatures: 746

Tagged with

NHS

Petition Action

Sufferers of rare cancers to have free access to new cutting edge treatments

Petition Details

Petition The Right Honorable Jeremy Hunt to persuade NICE to allow sufferers of rare cancers to have free access to new cutting edge treatments that are freely available to sufferers of more common cancers, such as Melanoma. My wife Beryl has a very rare Small Cell Carcinoma of the Ovary.

Additional Information

Following 13 cycles of chemotherapy Beryl is now undergoing an experimental course of immunotherapy in the form of "Pembrolizumab". Had Beryl been suffering from Melanoma she would have been able to access Pembrolizumab for free on the NHS. Although NICE have licensed Pembrolizumab for Melanoma, it is not licensed for her type of cancer. There are not enough sufferers to support a formal trial. We find the decision not to fund Beryl's, and other rare cancer sufferers', care very unjust.


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