Submitted on Tuesday 21st June 2016
Published on Wednesday 29th June 2016
Current status: Closed
Closed: Thursday 29th December 2016
Signatures: 341
stop DLA refusing rare disabilities! I.e Perthes Disease
Perthes disease, AKA Legg-Calvé- Perthes is a childhood condition affecting the head of femur in the hip joint & can sometimes cause mobility problems in later life necessitating a Total Hip Replacement. Symptoms include a limp occasional leg length discrepancy & pain in the hip especially at night.
Some of the children are in pain almost every day & some are in casts or they may need surgery involving cutting through the thigh bone and re-angling the bone so that the head sits properly in the socket pinning and plating it.In place ago help the head grow to the correct shape. I am disgusted to hear so many stories of DLA/PIP refusing to recognise this as a disability and turning down children in wheelchairs! This can happen not just once but 4-5 times per child. THIS IS A DISGRACE. Do your research DLA!!
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