Submitted on Thursday 8th September 2016
Published on Monday 12th September 2016
Current status: Closed
Closed: Sunday 12th March 2017
Signatures: 7,620
Tagged with
Suspend all trials of graded exercise therapy in children and adults with ME/CFS
In surveys hundreds of patients have reported harm — some becoming housebound or bedbound, indefinitely — from graded exercise therapy (GET). The Government must demand that research and funding bodies suspend all trials of graded exercise therapy for ME/CFS until the evidence has been reassessed.
Clinical trials such as MAGENTA still use graded exercise therapy, even in children, but are being justified on the basis of the flawed PACE trial. Scientists have severely criticised PACE, the major adult trial that claimed the therapy to be safe and effective. Thousands have demanded retraction of PACE’s “misleading” analyses and 24 ME/CFS charities from 14 countries demanded that its data be released for reanalysis. PACE is no basis for a trial in children or adults. Read more at stopGET.org
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