Submitted on Thursday 8th September 2016
Published on Friday 9th September 2016
Current status: Closed
Closed: Thursday 9th March 2017
Signatures: 13
Investigate the standard of care provided by local CFS ME services in the uk.
Chronic fatigue syndrome (CFS) / myalgic encephalomyelitis (ME), is a debilitating disease that causes many symptoms including severe fatigue. The quality of care appears to be perticually poor in the uk, especially in rural counties, with some services acting outside of nice guidelines.
My personal experience with my local CFS service has been extremely poor, I was 16 when diagnosed and until I was 18 I was seen 3 times be a children's OT. All that my local CFS service offers is an initial information session (the information was mostly wrong), an initial assessment and a 6 week managing life styles group, this is completely contradictory to the NICE guideline. And they do not offer CBT or GET, 2 of the 3 treatments recommended by NICE. This is not the only service like this!
You can't sign this petition because it is now closed. But you can still comment on it here at Repetition.me!
52.15.238.221 Thu, 21 Nov 2024 14:11:06 +0000
