Submitted on Friday 28th October 2016
Published on Monday 31st October 2016
Current status: Closed
Closed: Sunday 30th April 2017
Signatures: 2,460
Provide Orkambi for Cystic Fibrosis patients in England.
Orkambi (ivacaftor and lumacaftor) is a gene therapy based drug used to help treat CF for the most common gene (deltaF508). Use in Cystic patients can reduce lung function decline from 2.3% annually to 1.3% a significant improvement over the course of a cystics life.
http://www.bbc.co.uk/news/health-37795460
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