Submitted on Wednesday 9th November 2016
Published on Thursday 10th November 2016
Current status: Closed
Closed: Tuesday 2nd May 2017
Signatures: 132
Ehler Danlos Syndrome NEEDS doctors knowledge! FUND IT!
Ehlers Danlos Syndrome has different types, the common link between them is Pain. Most people affected by this illness aren't diagnosed until later on in their lives.It is mostly an invisible illness and can ruin your life completely. THERE IS NO CURE! Most doctors don't know what it is.#makeachange
I suffer from ehler danlos syndrome and life is hard at the best of times, when something goes wrong you would think a doctor to know at least a bit of background about it. NOT EDS! This is horrifying as so many people go undiagnosed and refused the help they need to manage it! Not all of us with EDS can make it to America for treatment so we need something set up to help people in the ????????. Every time a doctor says "i don't know what that is" it saddens me. Please help to change this????
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