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SMASH SMA The Number One Genetic Killer of Children

Submitted on Friday 9th December 2011

Rejected on Wednesday 21st June 2017

Current status: Rejected

Rejection code: no-action (see below for details)

Petition Action

SMASH SMA The Number One Genetic Killer of Children

Additional Information

Spinal Muscular Atrophy (SMA) is the number one genetic killer of babies. Our daughter, Estella, died aged 8 months from this awful disease. 1 in 40 people carry the SMA gene.

Every woman should be provided information about SMA and offered free screening for this disease in the same way that they are screened for other conditions. The advantage is that this is a once in a lifetime test.

More details on TWITTER @estellastar1


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This petition was rejected

The Government e-Petitions Team gave the following reason:

Full name of petitioner is not given.

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