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SMASH SMA Free screening for Spinal Muscular Atrophy

Submitted on Saturday 17th December 2011

Published on Wednesday 21st December 2011

Current status: Closed

Closed: Friday 21st December 2012

Signatures: 4,091

Petition Action

SMASH SMA Free screening for Spinal Muscular Atrophy

Additional Information

Spinal Muscular Atrophy (SMA) is the number one genetic killer of babies. Our daughter, Estella, died aged 8 months from this awful disease. 1 in 40 people carry the SMA gene.

We want the government to ensure that every woman is offered free genetic screening for this disease in the same way that they are currently offered screening for cervical cancer. This one off blood test should be provided for free to all women.


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