Submitted on Saturday 11th May 2019
Published on Thursday 11th July 2019
Current status: Closed
Closed: Wednesday 6th November 2019
Signatures: 325
Make Kuvan available on the NHS
Phenylketonuria (PKU) is an inborn error of metabolism that results in decreased metabolism of the amino acid phenylalanine. Untreated, PKU can lead to intellectual disability, seizures, behavioral problems, and mental disorders. It may also result in a musty smell and lighter skin.
This drug can literally change the lives of people with phenylketonuria (PKU). In addition, please continue research to find solutions for this debilitating condition.
https://www.nhs.uk/conditions/phenylketonuria
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