Introduce new-born screening for Adrenoleukodystrophy in hospitals across the UK

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Introduce new-born screening for Adrenoleukodystrophy in hospitals across the UK

Petition Details

This petition is to introduce screening for all new-borns across the UK for the genetic condition ALD, if the disease is found early on it is less likely to be terminal and can be treated.

Adrenoleukodystrophy (ALD) affects 1 in 17,000 individuals (males and females) worldwide.

Additional Information

References:
https://www.alextlc.org/what-is-a-leukodystrophy/the-different-leukodystrophies/
https://www.derbyshiretimes.co.uk/news/chesterfield-fc-give-brave-young-boy-10-with-rare-genetic-brain-disease-chance-to-lead-out-spireites-on-saturday-1-9674806
https://www.newbornscreening.info/Parents/otherdisorders/X-ALD.html

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