Submitted by Samantha Williams on Wednesday 29th July 2020
Published on Tuesday 22nd September 2020
Current status: Closed
Closed: Monday 22nd March 2021
Signatures: 2,718
Fund research into Complex Regional Pain Syndrome (CRPS)
As measured on the McGill Pain Index, CRPS is one of the most painful conditions known. There is no cure, and it often gets misdiagnosed.
There needs to be more research for pain relief options and clear support and after care once diagnosed. Public awareness is helpful and also solid knowledge for NHS staff.
If the UK could follow other countries and contribute to more research into CRPS and the other issues it causes, thousands of lives could be improved. My quality of life since CRPS is drastically lower. There needs to be more support and awareness. A 3 pillar approach that links together: pain relief, mental health & physiotherapy. The timings of the pillars is crucial i.e. physio after infusions, counselling ASAP, before you hit rock bottom and require the crisis team.
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