Myalgic Encephalomyelitis: Calling on NICE to focus updated guideline around appropriate legitimate medical care &any 'therapies' included secondary

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Myalgic Encephalomyelitis: Calling on NICE to focus updated guideline around appropriate legitimate medical care &any 'therapies' included secondary

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In other physiological conditions which do not have a known cause and no active treatments, the main recommendation for treatment is medical symptom control & maximising quality of life. This should be the same for ME patients.

If CBT and GET have to be included at all, -as they make a lot of patients worse - should be an adjunctive extra; not the sole 'treatment'.
In conditions such as heart disease, burns, rheumatoid arthritis etc. CBT & GET are included in overall package of treatment.
However these are never the sole treatment, for the simple reason that it would be inappropriate to expect a physically ill person to improve their health through such therapies alone. There is no difference to this with ME.

I ask Members of the Houses to work with NICE to ensure the updated guideline includes medical symptom management as a main medical treatment in the absence of active or curative treatment, and not inappropriately only recommend therapies.

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