Submitted on Tuesday 18th December 2012
Rejected on Wednesday 21st June 2017
Current status: Rejected
Rejection code: duplicate (see below for details)
EHLERS-DANLOS SYNDROME BETHANIES BATTLE
EHLERS-DANLOS SYNDROME (EDS) IS A GENETIC TISSUE CONDITION WHICH IS THOUGHT 1 IN 5,000 PEOLPE ONLY ARE KNOWN TO HAVE THIS CONDITION, THERE ARE STILL MANY AFFECTED PEOPLE WHO HAVE BEEN MISDIAGNOSED AND LIKEWISE RECIEVED IN CORRECT TREATMENT, MANY A GP DOES NOT UNDERSTAND THAT IT CAN EFFECT THE WHOLE BODY INTERNAL ORGANS AND SYSTEMS, MANY RELY ON FEEDING TUBES..PLEASE HELP TO MAKE OUR DEBILITATING INVISABLE.ILLNESS... VISABLE BY SIGNING TO HELP THE UK PLAN FOR RARE DISEASES.
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The Government e-Petitions Team gave the following reason:
There's already a petition about this issue. We cannot accept a new petition when we already have one about a very similar issue.
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3.129.26.22 Thu, 03 Oct 2024 14:17:10 +0100
