Submitted on Tuesday 11th June 2013
Published on Wednesday 12th June 2013
Current status: Closed
Closed: Thursday 12th June 2014
Signatures: 4
Tagged with
Government funding for rare genetic diseases such as Juvenile Batten's
Juvenile Batten disease is an inherited disorder that primarily affects the nervous system. Beginning in childhood, affected individuals develop progressive vision loss, seizures, and intellectual decline.
Vision loss is often the first noticeable sign of juvenile Batten disease, beginning between the ages of 4 and 8 years. Vision loss tends to worsen rapidly, leading to blindness. Recurrent seizures begin between the ages of 5 and 18 years.
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