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raise awareness for epidermolysis bullosa

Submitted on Monday 8th July 2013

Published on Tuesday 9th July 2013

Current status: Closed

Closed: Wednesday 9th July 2014

Signatures: 19

Tagged with

NHS

Petition Action

raise awareness for epidermolysis bullosa

Additional Information

I would like to raise awareness for the skin condition E.B, there is no where near enough funding for this condition and I believe that with more research and more public awareness a cure could be in the future, there should be more tests related to E.B during pregnancy, and a lot more training in the condition accross the NHS. As an E.B sufferer I feel that the doctors I deal with are far too unaware and confused when it comes to treating a patient with E.B


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