Submitted on Tuesday 24th November 2020
Rejected on Monday 30th November 2020
Current status: Rejected
Rejection code: irrelevant (see below for details)
I would like you to review the guidance around a drug called Teduglutide
Im asking you to review the approval in the UK of Teduglutide so that we and many other sbs patients and families can access this drug and put an end to the risks associated with sbs and TPN
Teduglutide is used in short bowel patients a illness my daughter suffers with, this drug has proved revolutionary in reducing the need for TPN and allowing patients to live a more normal life free of invasive medical treatments and procedures. The drug is available on the NHS in Scotland, many a time as a family considered a move here just to get my daughter the treatment that will drastically improve her quality of life. For this to be approved would be life changing for so many
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The Government e-Petitions Team gave the following reason:
We can't accept your petition because the UK Government and Parliament aren't responsible for the issue you raise.
Guidance on the commissioning of specific medicines by the NHS in England is produced by the National Institute of Health and Care Excellence (NICE). NICE's appraisal of the use of teduglutide to treat short bowel syndrome is currently ongoing and guidance is in development:
www.nice.org.uk/guidance/indevelopment/gid-ta10048
You can find out more about how to get in touch with NICE at:
www.nice.org.uk/get-involved/contact-us
18.116.62.177 Sat, 16 Nov 2024 03:25:02 +0000
