SMA type 1 children to be given tracheostomy if and when needed!

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SMA type 1 children to be given tracheostomy if and when needed!

Additional Information

My little girl has a non-curable disease called Spinal Muscular Atrophy, type 1! Doctors told me she wouldn't live passed her 1st birthday, but is now 19 months old.
Up until now, she has been fine. But recently she developed a chest infection and has became very ill.
Doctors are refusing to give her life saving treatment, as they feel she has no quality of life!! (Couldn't be more wrong!!)

This petition is to request every child with SMA type 1, to be given the necessary treatment to help them survive!

Thanks xx

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