Submitted by Julia Doyle on Tuesday 2nd February 2021
Published on Wednesday 3rd February 2021
Current status: Closed
Closed: Tuesday 3rd August 2021
Signatures: 3,199
Relevant Departments
Tagged with
Access ~ Drugs ~ England ~ fund ~ GENE ~ Ireland ~ NHS ~ NHS England ~ Northern ~ Northern Ireland ~ Primary ~ Proven ~ Regulations ~ Scotland ~ The NHS ~ UK ~ UK nations ~ US ~ Wales
Fund access to Kaftrio for CF patients in England in line with other UK nations
In Scotland, Wales and Northern Ireland the NHS is providing Kaftrio in line with US FDA regulations, in which anyone with one F508 gene and any other second gene can have Kaftrio, which has been proven to slow the decline of lung function, the primary cause of death for people with CF.
However, in England, still only patients with one F508 and certain other genes can access Kaftrio, leaving some patients deprived of living a life unlimited. The Government should work with NHS England (like they did with Orkambi) and/or provide specific extra funding to make this lifesaving drug available for people with Cystic Fibrosis with one F508 mutation, regardless of their second mutation.
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3.144.248.24 Thu, 25 Apr 2024 09:56:26 +0100
