Submitted on Friday 10th September 2021
Rejected on Monday 11th October 2021
Current status: Rejected
Rejection code: irrelevant (see below for details)
Relevant Departments
Compel the NHS to trace and contact people at risk of Huntington’s Disease
I would like to see the NHS develop and implement a contact tracing service for HD, enabling people to have genetic testing and plan their futures with all the information they need. This could lead to HD being wiped out within a generation.
The NHS has a confused, inconsistent and arbitrary approach to HD; because the disease is not treatable, it is not seen as serious enough to require medical staff to breach their patient’s confidentiality in order to tell people who are at risk. However, the NHS will not provide genetic testing on demand, forcing people to have counselling prior to testing, even then maybe denying a test to people whom they feel are not robust enough to cope with knowing they carry they gene.
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The Government e-Petitions Team gave the following reason:
Petitions must call for a specific action that the UK Government or House of Commons is responsible for.
Decisions about developing a contact tracing service for Huntington's Disease is a matter for the NHS, not the Government or House of Commons.
As a result it is not possible for the Government or House of Commons to take the action you have requested.
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