Scid newborn screening

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Scid newborn screening

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My child was born with severe combined immune deficiency. Basically means born with no immune system. It truley does mean a kiss could kill. Children born with scid will live no longer then a year without a bone Marrow transplant. The trouble is at the moment there is currently no newborn screening for this disease so our children have to become very sick before doctors suspect something is wrong. This then makes transplant more harder and riskier and our children suffer. Currently America is rolling screening out across the states to screen for this with all other routine baby screening. I would like the uk to follow suit just as Canada are starting to. This will give bubble
Babies even more chance of surviving please please help save bubble babies xxx let's lift the cure rate from 80% to 100%

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