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Require NHS use an "opt-in" system to use patient data for planning or research

Submitted by Paul Harrison on Monday 28th March 2022

Published on Monday 4th April 2022

Current status: Closed

Closed: Tuesday 18th October 2022

Signatures: 23

Relevant Departments

Tagged with

Enable ~ NHS ~ Shared ~ system ~ The NHS

Petition Action

Require NHS use an "opt-in" system to use patient data for planning or research

Petition Details

The NHS has introduced an "opt-out" system to enable patients to opt out from their data being used for research or planning purposes. We want the NHS to be required to implement an "opt-in" system, so patients are required to give active consent to their data being used for planning or research.

Additional Information

To enable informed consent, the NHS should be required to:

1- Inform patients exactly who may be using their data.
2- Explain what exactly any research is for
3- Provide assurances that data won't be used for any other research, or be shared or sold.


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