Submitted by Pauline Robinson on Tuesday 12th July 2022
Published on Monday 1st August 2022
Current status: Closed
Closed: Wednesday 15th February 2023
Signatures: 2,899
Fund improved training on and care provision for ME/CFS as recommended
Fund training for medical and care providers on the diagnosis and treatment, as well as improving diagnosis and care provision, for myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS), as recommended by NICE.
Both adults and children with ME/CFS can wait many years for a confirmed diagnosis. Because this condition can be so debilitating the length of time many wait for diagnosis is unacceptable. Many patients face scepticism, prejudice and stigma from medical professionals, too many of whom assume symptoms are psychological. This could be prevented if medical and care professionals better understood the condition. I therefore request funding to better train medical and professionals in diagnosis of ME/CFS, and to improve diagnosis and care provision.
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