Submitted on Sunday 7th August 2022
Rejected on Tuesday 9th August 2022
Current status: Rejected
Rejection code: no-action (see below for details)
To make a rare genetic condition known.
To make my sons rare genetic condition known to professionals
My son has a rare genetic condition and before we received his genetic tests back my son got called “a mystery” and I got told “I don’t know, we don’t know why he’s doing this and that” I feel like my son doesn’t get the care he should because no one knows about my sons genetic condition and I feel like if they did know about it my son would get the care he needs and more family’s would get diagnosed a lot quicker.
You can't sign this petition because it was rejected. But you can still comment on it here at Repetition.me!
The Government e-Petitions Team gave the following reason:
We are sorry to hear about your son, but petitions need to call on the Government or Parliament to take a specific action. We're not sure exactly what you'd like the Government or Parliament to do.
You could start a new petition explaining clearly what you would like the Government or Parliament to do. For example, we could accept a petition calling on the Government to increase funding for diagnosis and treatment of a specific genetic disorder, if that's something you'd like to happen.
If you'd like help drafting a new petition you can email us at [email protected]
18.191.5.239 Sat, 04 May 2024 11:11:59 +0100
