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To make a rare genetic condition known.

Submitted on Sunday 7th August 2022

Rejected on Tuesday 9th August 2022

Current status: Rejected

Rejection code: no-action (see below for details)

Petition Action

To make a rare genetic condition known.

Petition Details

To make my sons rare genetic condition known to professionals

Additional Information

My son has a rare genetic condition and before we received his genetic tests back my son got called “a mystery” and I got told “I don’t know, we don’t know why he’s doing this and that” I feel like my son doesn’t get the care he should because no one knows about my sons genetic condition and I feel like if they did know about it my son would get the care he needs and more family’s would get diagnosed a lot quicker.


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This petition was rejected

The Government e-Petitions Team gave the following reason:

We are sorry to hear about your son, but petitions need to call on the Government or Parliament to take a specific action. We're not sure exactly what you'd like the Government or Parliament to do.

You could start a new petition explaining clearly what you would like the Government or Parliament to do. For example, we could accept a petition calling on the Government to increase funding for diagnosis and treatment of a specific genetic disorder, if that's something you'd like to happen.

If you'd like help drafting a new petition you can email us at [email protected]

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