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Make congenital heart disease scans available at birth

Submitted by Lucinda Rose on Thursday 10th November 2022

Published on Monday 14th November 2022

Current status: Open

Open until: Sunday 14th May 2023

Current Signatures: 120
(count is updated approximately hourly)

Relevant Departments

Tagged with

2 years ~ 2022 ~ August ~ baby ~ disease ~ Hearts ~ hospitality ~ Lost ~ Offered ~ On the 19th ~ Power ~ Pregnancy ~ Reasonable ~ Ronnie ~ UK hospitals ~ US ~ Years

Petition Action

Make congenital heart disease scans available at birth

Petition Details

We would like all babies to be offered scans at birth for undetected congenital heart disease (CHD). 1000 babies leave UK hospitals each year with undetected CHD. Our Ronnie lived for 2 years seeing many doctors and having hospital admissions. There is not enough done.

Additional Information

We sadly lost Ronnie on the 19th of August 2022. Our hearts are shattered and the only thing we can do with our pain is turn it into power by not only spreading Ronnie's name, story and legacy but fighting for all babies to be scanned at birth. The reason we are fighting for this is simply because if Ronnies heart condition, which he had since he was born, was detected in either pregnancy or birth then maybe just maybe he would be here with us today…in fact we are certain.


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34.231.21.105 Mon, 05 Dec 2022 01:36:47 +0000