Submitted by Alex Wortley on Friday 7th July 2023
Published on Tuesday 11th July 2023
Current status: Closed
Closed: Thursday 11th January 2024
Signatures: 111
Relevant Departments
Increase funding for research into and treatment of STXBP1 encephalopathy
STXBP1 encephalopathy is a rare genetic condition characterized by abnormal brain function (encephalopathy) and intellectual disability.
We want the Government to increase funding for research into and treatment of STXBP1 encephalopathy, to help sufferers and their families.
We believe the NHS is far behind other countries in their knowledge of and treatment available for this terrible condition. Additional funding could held address this gap, and identify new treatments.
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18.227.46.74 Thu, 07 Nov 2024 21:49:00 +0000