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Increase funding for research into and treatment of STXBP1 encephalopathy

Submitted by Alex Wortley on Friday 7th July 2023

Published on Tuesday 11th July 2023

Current status: Closed

Closed: Thursday 11th January 2024

Signatures: 111

Relevant Departments

Petition Action

Increase funding for research into and treatment of STXBP1 encephalopathy

Petition Details

STXBP1 encephalopathy is a rare genetic condition characterized by abnormal brain function (encephalopathy) and intellectual disability.

Additional Information

We want the Government to increase funding for research into and treatment of STXBP1 encephalopathy, to help sufferers and their families.

We believe the NHS is far behind other countries in their knowledge of and treatment available for this terrible condition. Additional funding could held address this gap, and identify new treatments.


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