Submitted by Jemma Heighway on Thursday 7th December 2023
Published on Friday 29th December 2023
Current status: Closed
Closed: Wednesday 29th May 2024
Signatures: 4,048
Relevant Departments
Fund increased care and support for people with Mast Cell Activation Syndrome
As someone affected by MCAS challenges, including misdiagnosis, limited awareness, and medication access, I urge government to fund activities to enhance awareness, increase research funding, support medication access and collaborate with patient advocacy to support a patient-centric approach.
MCAS patients suffer due to misdiagnoses. Lack of awareness leads to delayed diagnoses; we believe urgent training is critical. MCAS patients face medication access challenges; we believe government advocacy for NHS-prescribed medication is crucial. Insufficient public awareness requires government-led campaigns to reduce misunderstanding. Collaboration with advocacy groups integrates MCAS experiences; government engagement can help ensure patient perspectives shape policies. Addressing these issues could help those with MCAS, improving healthcare. We consider your support is vital for these changes in MCAS patients' well-being.
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