Submitted by Lucy Hannaford on Wednesday 20th March 2024
Published on Tuesday 30th April 2024
Current status: Closed
Closed: Wednesday 29th May 2024
Signatures: 215
Relevant Departments
Funding for prenatal genetic screening tests through pregnancy
I would like funding so genetic testing is always offered as part of the screening tests during pregnancy.
I lost my baby son to a rare fatal disease called ‘alveolar capillary dysplasia’. There were no signs or symptoms of the disease throughout my pregnancy.
Shortly after birth, my son was transferred to a specialist hospital but he could no longer be saved.
This is a cruel disease and can only be picked up prenatally through a genetics test. I would like testing to be done to identify genetic diseases during pregnancy to prevent others going through this devastating ordeal. Having testing available as part of routine screening could enable parents to be made aware and possibly prevent this from happening.
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3.133.129.97 Tue, 05 Nov 2024 14:01:05 +0000