Submitted on Wednesday 7th January 2015
Published on Friday 9th January 2015
Current status: Closed
Closed: Monday 30th March 2015
Signatures: 208
More research to be done on finding a cure to Rare Kidney disease MPGN/DDD C3GN
MPGN/DDD C3GN is a very rare Kidney disease,
MPGN (Membranoproliferative Glomerulonephritis Type 1, sometimes known as Mesangiocapillary Glomerulonephritis or MCGN), DDD (Dense Deposit Disease, previously called MPGN Type II) and C3G (C3 Glomerulopathy) are related diseases which damage the kidneys. These diseases are very rare and are characterised by dysfunction of the immune system.
We in the Front line patients, Families, carers are asking you our goverment for more research and funding to our renal UNITS with in the NHS.
Key objectives.
Raise the profile of these rare diseases amongst the general public, medical practitioners, government and all relevant organisations/companies
Work towards improving accessibility of treatments and drugs for patients.
In finding a cure, this would save money and no need for Dialysis to be done 7 days a week. I will let you do the maths.
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