Have your say on government e-petitions

Fund NHS access to Tofersen for all people with SOD-1 Motor Neuron Disease

Submitted by Graeme Field on Saturday 15th November 2025

Published on Wednesday 17th December 2025

Current status: Open

Open until: Wednesday 17th June 2026

Current Signatures: 54
(count is updated approximately hourly)

Relevant Departments

Tagged with

Access ~ Benefits ~ disease ~ Extend ~ fund ~ fund NHS ~ NHS ~ Proven ~ Unethical ~ Universities

Daily and Total Signatures by Date

Popularity

This petition has 54 signatures in total, with signatories from 35 constituencies. That makes it the 1,468th most popular open petition, and the 28,374th most popular of all time.

Geography

This petition has a Diversity Rating of 12% (very low) and a Local Issue Rating of 11% (average).

Signatures by Constituency

Signatures by Region

Signatures by Country

Notes on geography

Signatures by constituency and region don't necessarily add up to the total number of signatures. That's because the petitions system doesn't validate postcodes, and some people mistype them. And without a valid postcode, a signature cannot be allocated to any particular place.

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216.73.216.219 Thu, 04 Jun 2026 19:06:07 +0100