Submitted by Portia Wharton on Saturday 24th January 2026
Published on Wednesday 25th February 2026
Current status: Open
Open until: Tuesday 25th August 2026
Current Signatures: 112
(count is updated approximately hourly)
Relevant Departments
Tagged with
Access ~ Cost ~ disease ~ Essential ~ genetic ~ Geography ~ health care ~ Healthcare ~ Individuals ~ journey ~ list ~ listing ~ Managed ~ My Life ~ NHS ~ overwhelming ~ Physics ~ Quality ~ Shoulders ~ Sickle ~ Sickle cell ~ Sickle cell disease ~ The NHS ~ uncertainty
Add Sickle Cell Disease to the NHS Prescription Charge Exemption List
Living with Sickle Cell is a journey which can be defined by unrelenting unpredictability and hardship. This is not an abstract issue or a distant statistic - it is my life. I am not just writing about Sickle Cell; I am living it. The health scares are constant, and the uncertainty never rests.
Beyond the physical pain and emotional toll. The cost of medication. These medicines are not optional. They are life-sustaining that allows patients to manage complications, and maintain a quality of life. We think it is both strenuous and unjust to expect individuals already battling a debilitating genetic disorder to also shoulder such overwhelming financial strain.
Proactive healthcare is essential to managing it. Access to medication should not depend on income, geography, or circumstance.
If you want to sign this petition (as opposed to merely discuss it), you need to do that on the government's e-Petitions website.
216.73.216.219 Thu, 04 Jun 2026 03:05:21 +0100
