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Tarlov cyst disease.

Submitted on Sunday 22nd March 2015

Rejected on Wednesday 21st June 2017

Current status: Rejected

Rejection code: no-action (see below for details)

Petition Action

Tarlov cyst disease.

Additional Information

A Tarlov cyst is a dilation of the nerve root sheath or outer covering of the nerve. Cerebral spinal fluid gets trapped inside the sheath and forms a cyst. The fluid in the cyst can put pressure on the nerve inside and on the adjacent nerve roots and cause debilitating symptoms. The cyst is the nerve and therefore cannot be cut out.
When pain is intractable, despite a variety of interventions, or when other neurological symptoms become severe and the sacrum is eroding and remodeling, surgery may be the treatment of choice. There are a small number of physician's in the world who have surgical expertise in the treatment for TCs, and the short-term and long-term outcome of surgery is improving but variable in individual patients at this time.
However, the surgery is not available under the NHS, either routinely or through specialised commissioning because of a lack of evidence for its effectiveness.
UK citizens have to pay up to 30.000 £ for a private surgery abroad(Cyprus or USA).


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