Have your say on government e-petitions

Fund NHS access to Tofersen for all people with SOD-1 Motor Neuron Disease

Submitted by Graeme Field on Saturday 15th November 2025

Published on Wednesday 17th December 2025

Current status: Open

Open until: Wednesday 17th June 2026

Current Signatures: 54
(count is updated approximately hourly)

Relevant Departments

Tagged with

Access ~ Benefits ~ disease ~ Extend ~ fund ~ fund NHS ~ NHS ~ Proven ~ Unethical ~ Universities

Petition Action

Fund NHS access to Tofersen for all people with SOD-1 Motor Neuron Disease

Petition Details

We call on the Government to fund universal, NHS access to the life-extending medication Tofersen for all people who have been diagnosed with SOD-1 Motor Neuron Disease.

Additional Information

We are asking for the Government to make Tofersen available to all who would benefit from treatment. The medication has been proven to extend lifespan, and in some cases stop progression of symptoms. We believe the current situation is unethical.


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at petition.parliament.uk

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