Submitted by Graeme Field on Saturday 15th November 2025
Published on Wednesday 17th December 2025
Current status: Open
Open until: Wednesday 17th June 2026
Current Signatures: 54
(count is updated approximately hourly)
Fund NHS access to Tofersen for all people with SOD-1 Motor Neuron Disease
We call on the Government to fund universal, NHS access to the life-extending medication Tofersen for all people who have been diagnosed with SOD-1 Motor Neuron Disease.
We are asking for the Government to make Tofersen available to all who would benefit from treatment. The medication has been proven to extend lifespan, and in some cases stop progression of symptoms. We believe the current situation is unethical.
If you want to sign this petition (as opposed to merely discuss it), you need to do that on the government's e-Petitions website.
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